Thursday, April 1, 2010

Testing and More Testing

I have so much to update! It's been busy around here lately. I just got back from Utah on Monday night and then worked Tuesday and Wednesday. I will post about our fun trip soon. :)

I wanted to post about Preston though. Kyle and I took him to the University of Washington Childhood Development Center for an evaluation. We signed up with them back in January (b/c of our concerns with his development/behavior and his physician referred us to them). It's normally a 6-9 month wait to get it, but luckily we got in in just a couple of months. It will take 4 different Monday's of testing/evaluating/questioning before we are finished. Our first visit was last Monday and it was from 8:20am until 12:30! Long day. Preston wanted to go home. He kept saying "done" and "bye" to leave. They first had a psychologist evaluate him. I was in the room with him filling out this ginormous questionnaire and survey. Kyle was behind a 2-way window with another lady observing. They would just have Preston complete simple tasks and time him on how long it took him to do it. They would see if he could point out the right pictures when named, play with different items (like imitate play) and other things. They even gave him a snack to see how he did with that. It was interesting to see what they asked him to do. I thought he did fine. We don't find out what the results are until a few more weeks.

Then we waited for over an hour before our next appt for a medical evaluation. (They had a lame play area for the kids. Maybe Children's hospital would be better...I don't know, but we were itching to go.) There were two doctors and a premed student that visited with us (in this tiny, tiny room- we were squished!). One doctor went into another room behind a 2-way window and observed Preston. The other doctor asked us a million questions about Preston from birth until now, all our parents, siblings, etc and their health/learning abilities. We later found out that the doctor working with us is LDS. We were glad to know that. He was very nice. The premed student "tried" playing with Preston. He was tired and wanted to leave so at first he clung to me and didn't want to play. Then he perked up and they were playing and reading books together. After all the questions, they checked Preston out and watched him run, climb stairs, walk on a balance beam and other things. The other doctor came back from the other room and they talked to us about what they thought. They didn't see signs of Autism and thought his movements were within normal (Preston is pretty stiff with some of his movements). They agreed that he had a speech delay, but thought cognitively he is fine (he already knows all his ABC's and numbers and can count!) They thought he was a bit uncoordinated, but still within normal for his age and that would improve over time. This was promising to hear. We go back next week for a parent interview, then the next week for a speech pathologist evaluation and then the following week for an overall review from all their findings. We'll be glad to have this over with, but I think we are both glad we are doing it now. We live in a good area for this kind of help and our school district we live in is also has great resources. Preston may qualify for preschool through the school district and if he does then he will start that in the fall after he turns 3 yrs old. Until then, we still have the speech pathologist come to our house weekly and work with him. We also are now taking Preston to a preschool once a week to get more social interaction with other kids. And so far he loves it. It's a preschool through The Little Red Schoolhouse- that is where the speech pathologist comes from so that is how we found out about it. I had a hard time with all of this a couple weeks ago. I was probably in denial about it thinking he would snap out of it. But then the SLP said it could take a while and that got me all depressed. I didn't want to deal with it anymore and wanted a "normal" child, but I have to think of what is best for Preston and try to get him what he needs.

13 Fabulous Comments:

Brenda said...

Preston is lucky to have such caring and proactive parents. I've dealt with this a little bit and know how it feels to hurt for your baby. I've never mentioned it on my blog for privacy reasons, but if you want to talk...just call! Personally, I think your Preston is a doll;)

Rose said...

I'm sure Preston will do great! We loved the Little Red Schoolhouse for our oldest boy (Kate's age). He was delayed when we first put him in there, but now you wouldn't know that! The school district is great too, and our son made a lot of progress there. She said it will take awhile, but you'll be surprised at the progress he makes. Have fun!

marti said...

Thanks for sharing. I am sure it is hard but I love people that share about what is really happening in their lives and not just the perfect happy stuff. It makes me feel more normal. Great attitude! and you are absolutely right, you are doing what is best for Preston. Of course, I am all about early intervention and speech therapy (just a little bias...) :) Good luck!

ericksonzone said...

Wow! That would be a lot to deal with - for you and Preston. You're doing great. It's hard to go through it; I remember when Paul had is surgery. I hope all continues to go well.

Shar said...

you're doing awesome and so is he! i can imagine it's all so tiring and stressful, though. i hope all goes well. i bet preston will be so excited to go to preschool and will do awesome.
it was so good to see you!

~Aimee~ said...

::hugs:: I know your feelings all too well. It plain ol' sucks to have to readjust your dreams and ideals of your child, even if it's temporary because they'll overcome it. It's tough because it's not normal. But it can also be frustrating because you see how much your little one does know and is normal, it's just not in everything. I have my days where I get really discouraged about Jilly's delays. When I got her preschool registration form and I saw the "Disability: Developmentally Delayed" label, it really stung. But it's what it is and how grateful I am to be in a place where there are resources to help her! Anyway, my point is, I'm there with you and you can always vent to me. :-)

An Ordinary Mom said...

Many hugs to you! I can truly relate to what you are going through. When C was little, we had many scares with him. He went through a ton of testing, had speech therapy and some other interventions. He is now 5 and is within the right parameters. It is heart wrenching though when you ache for your child. When you long for them to be "normal." You want them to be able to experience life without issues. We should chat sometime. And good job on being so proactive. We will keep your family in our prayers!

Anna said...

Do any of us have "normal" children?
I admire your courage to go forward with the testing and everything that Im sure is in Preston's best interest. It will be nice to know what and if there is anything you can do to help him. All I know is he is pretty dang cute!

wandering nana said...

I know I only watched him once a month but to Preston always seemed like a normal kid to me. He is an amazing kid. You are great parents. Hang in there.

melanie said...

I just love Preston and he's so dang smart. I love to quiz him on his letters just for fun. :) I know it's hard to watch him struggle and not know exactly how things are going to go. I'm so glad you like the Dr you saw and feel good about the appts you have set up. You and Kyle are such good parents!! I'm here for you anytime you need something, love you!

Granny DeeAnn said...

Let us know how the appt. went today. And by the way.... Grandma thinks Preston's so SMART!!! Hopefully this summer we can really row, row, row a boat!!! Together! I love you all.

Stephanie said...

We had a speech pathologist helping Noah and it was really good for us because she would show us different ways to communicate with him to get him saying new words. We definitely saw the most change in Noah when he started to go to preschool. I was the same way when we first noticed Noah had a speech issue and I kept thinking I was making a big deal out of nothing, but it was obvious that he needed help and so far it has worked out great. I've just been so grateful for the resources we've had to help him. Good luck with everything!

Vicki Sabin said...

I'm glad I was one of the last ones to post a comment because then I could read all the wonderful comments made by others. How lucky you are to have such supportive friends! But I wanted you to know how lucky Preston is to have you as parents. And that makes me lucky that I'm his grandma!